Friday, October 15, 2010
Answers...Looking for Answers
Even a doctor at National Jewish in Denver, a world renowned allergy center, says that the only way to truly test a food is a food challenge test. This means a nurse sits with you for hours while they give you more and more of the food, check your eczema, etc, and log results. It's $200-$400 per FOOD. Blood tests and prick tests can have many false results- positive AND negative, which means you could potentially take food away that isn't actually a problem, or give them a food that wasn't ok. Unfortunately, with friends, we have seen both instances of this, and it's SO FRUSTRATING!
SO! We haven't been eager to subject our 2 year old to those tests, and then take a food away that could potentially be a false positive. Remember that we didn't know he would actually have an anaphylactic reaction until last month. AND we have hoped beyond hope that as he gets closer to 3 that he will grow out of some of the sensitivities, as we've been told may happen as well. The end result of all this is: we still don't get any definitive answers, even with the time and money investment in these kind of tests.
Through elimination of stressing foods, supplementation (probiotics, enzymes, oils and some other GI support supplements) and some food rotation, we were able to completely eliminate Max's GI sensitivities AND his eczema...for a while. But in the last month or so, it seems that there are some little rough/dry patches behind his knees (not scaly or red, but rough), which may indicate that there is another food that he has developed a sensitivity to. We had been told this sometimes happens. When a child's system is so compromised, they basically can begin to react to any food they eat regularly.
I wish I could turn my brain off sometimes...this would be why I've been working at night so much lately...it's a great escape, so I can think about something other than the fear. The fear, the grief, the frustration.